Decisions.....

When we talked to the doctor on Sunday, he told us that they would be trying Wesley back on the nasal cannula on Monday. When I called to check on him that day, his nurse told me that he was struggling a little, so they opted not to try him on the nasal cannula, but instead increased the pressure of the c-pap from a 5 to a 7. I talked to another doctor yesterday, and he told me that it is time we have another care conference to discuss our options. At this point, Wesley is off the steroids, but still on the c-pap. He is not necessarily regressing, but is not progressing either. We have to decide if it is best to keep him on the c-pap or have him on a trach. Each side has it's positives, but also it's negatives. Ideally, I would prefer to keep him on the c-pap, but that could cause developmental issues for him since he cannot move around like a normal baby. But I fear having another surgery and what may be the long term effects of the trach. We will be having a conference soon with everyone involved in his care, most specifically the pulmonologist and those dealing with Wesley's respiratory issues. I have a HUGE list of questions for them so that we can have all the info before making a decision. Ultimately, we want what is best for Wesley in the long run, not what is best or most convenient for us. He is getting big now, so we will need to make a decision sooner rather than later. He is now 10 lbs 2 oz. He gained over a pound last week alone. Keep him in your prayers!!!!