Wesley James: Begin Day 1 of life outside of the NICU

Although it was sad to leave our NICU family, Wesley is ready to move on!!! He has done well on the home ventilator, and Baylor was ready to have his cute little face there. The transition went surprisingly well. After taking his first professional pictures at the NICU, we loaded up and headed out around 9:45 on Wednesday morning. There are a lot of differences between the two locations, but we will adjust. I already miss my daily check ups. I called this afternoon from work to see how he was doing. I'm so used to getting a full description of his day, but all I got today was, "He's doing fine." That was a little rough, but there are more kids per nurse at Baylor than Presby, so I guess that is to be expected. I feel very positive about the transition and can't wait for that little guy to be home!!!! We met several of the staff on Wednesday, his nurse, assistant, respiratory therapist, nurse practitioner, and other staff (I don't remember their official titles off hand). John and I are each expected to spend 2 to 3 hours a week training, then have a few 24 hour sessions where we provide 100% of his care (and this is separate, not together). The respiratory therapist there yesterday won me over from the start. Within an hour of Wesley being admitted to Baylor, they changed his trach. One of my biggest concerns was that Wesley loved to pull on anything attached to the trach, including the ties. So he would always untie the part holding the ventilator attached, and you can imagine what happened from there. They use a different brand of trach at Baylor which is more flexible and the ventilator locks on so there are no additional ties. It solved a major problem that I was concerned with. He is now up to 13 lbs, 5 oz!!! Now we just have to find a mobile like the one he had at the NICU, and he will be a happy boy!!!!

About 1 hour before the move: