So Now..... We Wait

Oh how crazy these last 2 weeks have been. Wesley had an appointment with his GI doctor on Tuesday 11/30. Everything went well, a few changes to his feedings since he has lost some weight (he weighed in at 22.5 lbs, 30 in). Well, we got home, and he started acting like he was in a little discomfort. We didn't figure out what was wrong until a little after 8:00 that night when he gave us back all of his feeds for the day and then some!!!! We've had this happen plenty of times before, but it has been over a year since he was admitted to the hospital for this. So we held his 8:00 feed that night and planned to give Pedialyte for the rest of the night and pick back up on the feeds the following day. Well, he wouldn't take the Pedialyte either, and by early morning he was severely dehydrated, and we were forced to take him to the Children's ER. They sent him for x-rays and an upper GI exam. With the contrast from the upper GI, there was a problem noticed in his small intestine. Nothing was really getting past that point, but it did not appear that there was a physical blockage. He stayed in the hospital for the next few days while we waited to see if he would self correct of if he needed surgery. He finally started accepting some feeds, so they sent him home on Monday night 12/6. Less than 24 hours later (about 12 hours to be exact), same problem, back in the ER. They are doing some thorough studies this time to make sure there are no unseen issues. He still may have to have surgery, it has not been totally ruled out, but is very unlikely at this time. Unfortunately, this may just be recurring problem that we have to handle when it flairs up. His doctor said this is a relatively unresearched issue as there are very few micropreemies that make it to the toddler age, and of those, not all have this problem. It's not something you want to hear in the medical field, but it's starting to become a trial and error treatment for him with different meds. He had an MRE (Magnetic Resonance Elastography) performed today (very similar to an MRI, feel free to google it if you want to know more about it). It takes a while to review the results, so it may be a day or 2 more before we find out the results. Hopefully this will give the doctor's a more clear idea of what is going on without doing a CT scan or an endoscopy. This has turned into a waiting game, but I'd rather wait and have some diagnosis ruled out than to have the continue to happen again and again. He has been in good spirits the last few days, but I know he would love to be home (just like the rest of us!!!). Just continue to keep him in your prayers!!!!

New pictures:

Halloween: