On the Home Vent!!!

Wesley was moved to a home ventilator yesterday. He did well yesterday, we just need to see how he does over the next few days. If he continues to maintain good numbers, then we may be moving to Baylor's children's home in the next week. We will just have to wait and see what happens. They did start him on some steroids on Sunday to try to bring down his oxygen needs. He was needing around 50% oxygen, and the pulmonologist wanted him no higher than 40% to be moved to Baylor. It has made an impact on his oxygen needs, but the problem is that he may not maintain those lower oxygen needs once he is off steroids. That was the doctor's primary concern. We will just have to wait and see. Wesley weighs about 12 1/2 lbs now but will probably be gaining weigh quickly because they have put him on a higher calorie food to help grow. The idea is that the quicker he grows, the more new lung tissue he grows. As of this past Monday, he is officially 7 months old. We are so ready to have him home!!!