Today was the Due Date

So today was baby's original due date..... 12/28. But he's actually 15 weeks old as of yesterday. Today was still a very special day for all of us though. We finally got to hold him!!!! It was such an awesome feeling, I can't describe it. He was so happy and peaceful. I can't wait to go back tomorrow!!!!

And here is another cute picture from yesterday..... all eyes!!!

Baby's 1st Christmas

We celebrated Wesley's first Christmas today. I thought it was a very special time. He was a little fussy and still not really stable on the new ventilator, so we did not get to dress him up like we wanted for pictures, but we will do that here over the next few days. There have not been many changes over the last few days. The only major change made was to increase the ventilator pressure just a little to help him become more stable. I'll leave you with some pictures of my little Santa Baby.

Moving Foward

Wesley was moved to the conventional ventilator last night. He isn't completely stable on it right now, but he is working on it. He was behaving himself when we visited tonight though. Below is a picture of Wesley with his Gramma and Grampa Byork when they visited on Friday night. I'm super excited about Thursday and baby's first Christmas. It's really odd to think that he's 14 weeks old, but he is still a week away from his due date. He is still as cute as can be!!!!

I love my paci!!!

Special Treatment

Over the weekend we talked to one of the doctors about Wesley's status. He told us everything from best case to worst case scenario. Best case would be that a miracle just happens and he comes home just fine, which that would be God's doings, not the doctors. I prefer not to talk about or even think about worst case, that's a parent's worst nightmare. But as of right now, we are looking somewhere in the middle and moving forward with his treatments to get him home one day. The doctors called in a pulmonologist to assist them with Wesley's lungs. The doctor told us that he has some of the sickest lungs they have seen in a while. He has been remaining stable, but not getting better. So the pulmonologist came on Tuesday and evaluated Wesley's situation. He made 3 changes. Wesley is now on a different steroid, a different diuretic, and they changed his feeding tube so that it bypasses his stomach and goes straight to the intestines. The goal is to get the fluid as far away from the lungs as possible. He has been retaining fluid for a little while now so that is why the diuretic and the feeding tube were changed. The steroid is just a stronger steroid to help his lungs. The goal is to get him off of the oscillating ventilator and back onto a conventional ventilator so that they can start breathing treatments. They cannot do that while he is still on the oscillator. The other major factor they are concerned with is the tube down his throat. Although it is not an issue right now, we were told at about 44 weeks gestation (about 6 weeks from now), it becomes a long term issue if he is still intubated. If he is stable enough on a conventional ventilator, then the main option will be to insert a trach. So as of today, the main focus is to get him back on a conventional ventilator to start breathing treatments. Then we will focus on remaining stable on the ventilator. Then if necessary, the trach option will be discussed. And as always, this treatment plan may change at any time depending on how Wesley reacts to it. The past few days he has been doing much better. He had a really rough weekend, but starting doing better on Monday and has continued to progress, just very slowly. I know most are still saying prayers for Wesley, so all I ask is for continued prayers. There can never be too many prayers said for him!!!

Happy 3 Month!!!

Wesley is 3 months old today!!! Yay for baby!!! He weighs 5lbs 14.5 oz, and is 16 in long. He did come down with another infection within the last few days. He is on antibiotics for it and should be over it soon. They have also started back up some steriods to help his lungs. He is still requiring a significant amount of support from the ventilator, so please continue to pray. Ideally, the doctors would like him off the ventilator within the next 6 weeks, and so would we. If he is not, there may be some different options to pursue at that time (which we have not fully discussed with the doctors yet). We just hope that we do not get to that point. He is still as cute as can be, and John thinks his eyes are starting to turn green.... we'll see!!!!

Sleepy Hat Boy

These are some pictures from yesterday, I just thought they were too cute not to post. Nothing really new with Wesley, he's remaining stable. But as always, no news is good news.

One happy baby

Some baby was happy to see Mommy!!! I got some pictures of Wesley smiling.... too cute!!! He is now 5 lbs 3 oz, almost 12 weeks old. The doctors wanted him to get rest this week and remain stable with his ventilator settings. So far so good! They will begin trying to wean him of the ventilator the next 7 to 8 weeks. Ideally he will be completely off the ventilators by the end of January, possibly sooner if his lungs will allow it. Overall, he's had a good week and getting cuter everyday!!! Below are some pictures from last night.... enjoy!!!