Just an update.....

Wesley is home, and I have started back to work. I thought I may have more time once he was home (with the help of the nurses of course), but it seems like I have even less time now!!! Between playing, bath, laundry, cleaning..... so much to do with and for that little guy!!! So here's the current update, and I'll get pictures up soon. Just a quick refresher.... Wesley came home from Our Children's House on Tuesday, June 9, but then ended up at Children's Medical Center that Sunday, June 14. He was going into respiratory distress, and we could not figure out the root cause. He had 2 episodes that Sunday where he literally was turning blue. He was fine throughout Sunday night, but then had another episode on Monday while at the hospital. Luckily that was the last time. He also had an infection on his chest from scar that had already healed from his more recent broviac line. So, during the stay at the hospital, he had his chest wound doctored, more frequent breathing treatments ordered, added a steroid to his breathing treatment medications for 2 weeks, and changed the size of his trach to a pedi size rather than a neo. He came home that Friday, June 19, and we have not had the same problem since. He had his first pediatrician visit on Monday, June 22. Although transporting him is not an easy task, we got him there with all of his emergency equipment. He had to get another round of shots (which he hated) and the doctor said he looks great. His weight was 16 lbs 4 oz and is 24 in long. His mental development appears to be on track for his adjusted age. His physical development is still a little hindered due to his medical equipment. It's hard to practice rolling over and tummy time with all of his tubes. We should be scheduling appointments with the therapists soon so they can come work with him. He did have to go back for a quick visit on Friday, June 26 for a granuloma that was forming at his trach site. They just put some silver nitrate on it, and that should clear it up!!! All of that said, he is doing really well at home. He seems very happy and comfortable. He likes to talk and make cute baby noises. One of the concerns with the trach in the first place was his speech. We were told we would not be able to hear him until the trach was out. Well, he technically has outgrown the trach size that he is in, so air is escaping around the trach allowing the air to pass by the voice box and make sound. The doctor said he was doing well with the air leak, so he is leaving it alone. I was pretty excited about that. We are through with scheduled doctor's appointments until the end of July, so we have time to enjoy ourselves at home. I should have new pictures up very soon!!!!

We may be in the hospital, but we still have FUN!!!

It's good to still get smiles even when baby is sick. We played yesterday, and I actually got Wesley laughing for the first time. I could actually hear his little giggles. The doctors are talking about changing his trach size to something larger, so this may be the last time for a while that I will be to hear anything from him. It was really sweet. Baby LOVES Eskimo kisses!!!

Baby Shower Time!!!

We had a baby shower on Sunday for little guy. It was a lot of fun.... wish every else could have made it, but had some cancellations due to sickness. Below are pictures from the shower and the decor. Wesley's paternal grandma, Aunt Aletha, and cousin Dawn got the house all decorated. They did a beautiful job!!!! Unfortunately we are now back in the hospital. Wesley had a few serious episodes on Sunday, he was obviously not feeling well. We had the first episode midday on Sunday before anyone came over for the shower. He started crying and screaming (keep in mind he is trached, so we technically should not be able to hear him cry) and turning blue. His oxygen saturation dropped significantly. Luckily his nurse was able to get him readjusted. He did that again around 6:30 Sunday night. He also had a lot extra secretions from his lungs and nose. I noticed that evening that his old broviac scar had become aggravated and infected. We decided it was time to get him some help. He was taken to the ER at Denton Presby, then transported to Children's Medical Center in Dallas. We are still at the hospital, but he is slowly feeling better. He had yet another episode on Monday afternoon, but we were in the right spot for it. He was quickly attended to by the nurses and respiratory therapists and the doctor was paged. They saw everything we saw at home. The respiratory therapist performed an emergency trach change to ensure that nothing was blocking his trach. It took a while before he calmed down, but he has been good since then. They are still looking to see what may have happened. He has been good since then, just don't have a come home date yet. Hopefully he will be back home in the next few days if he remains stable. But on that note, enjoy the pictures!!!

Home.....

Wesley is finally home!!! He's doing well, getting adjusted to the new environment. His nurses are taking good care of him. It's so nice to not have that drive to Dallas anymore. I can walk to see him now!!!! He left Baylor weighing 15 lbs 14 oz.... almost reached 16 lbs. Here are some pictures from yesterday:

Not a happy face, but still a cute boy:

The ambulance ride home:

In my room for the very first time:

Home and exhausted:

Cute bathtime fun:

Seriously watching TV

Sleepy kisses

2 days till HOME!!!!!

All of Wesley's home medical equipment has arrived..... I'm finishing up my last day of training tonight, Dad finished his last night...... nurses are ready and waiting for Tuesday..... I think we are good to go!!!! Below are some pictures from this past week, have been so busy that I haven't had a chance to post them yet!!!!

Ready to take a quick ride outside with Mommy:

I just look like trouble:

Look what my silly Daddy did to me: