Home and Happy

Wesley got to come home last Wednesday, 12/29.... 29 LONG days in the hospital. He is doing well at home, incredibly happy and social. We have notice several changes, some good, some not so good. His feeds are going well, no problems there. His breathing is great! He has only needed oxygen once since he has been home and that was only for a few hours overnight. That was on Thursday night, but has not needed it night or day since. He is much more social and interactive than he was before he went into the hospital. Not sure what brought on that change, but it is a nice change. The one issue we have run into is that he no longer wants to walk or stand. He is receiving Lovenox injections in his thighs, and we believe that may be the reason he does not want to stand. He has a huge knot in his right thigh and several smaller ones all over. He will put some weight on his left leg, but avoids putting any weight on his right leg.... probably due to the knot. However, that should go away in time.

We finally got the official diagnosis that Wesley has a prothrombin factor 2 deficiency (unfortunately he can thank mom for those genes). What this means for him.... I'm not quite sure. We will definitely have to be prepared for Lovenox or other blood thinners for any future surgeries he may have (although we really hope that surgeries are not in his future). We will be going in for lab work on Tuesday, 01/11. He will need to have further evaluation done since some of his blood work may have been scued while in the hospital due to the lack of nutrition (from obvious reasons). We will also have our follow up appointment with his GI doctor that date.

So, we will have lab and GI next week, opthamologist the following week, and vent clinic the next week. If things continue on as they are, this should be our last vent clinic!!! Yay!!! I assume we will also have a follow up appointment with a hematologist once we get the results back from the blood work. This month is looking to be a busy month with appointments, but at least we are home!!!!